Tag: RSD

Week 2 on ADHD Meds: The Rollercoaster Continues

Week 2 has come to an end and honestly… I’m knackered. Mentally, emotionally, physically. But also… cautiously hopeful?

Here’s how things went down:

Day 1: The Shift Begins

First day on the increased dose and I definitely felt the difference. My brain wasn’t screaming at me from 37 different directions more like whispering from the corner. I felt alert, focused, and way more productive than usual. I got housework done, emails sent, art created, and even ate actual meals (plural).

But alongside all that, I found myself feeling quite emotional. It hit me how much I’ve struggled through life, school, work, relationships, just surviving with no idea why it was all so hard. Now, at 46, these “magic pills” are helping me make sense of myself. It’s bittersweet, but mostly it’s hope. Finally.

Day 2: Weird but Wonderful

Still sleep-deprived, but my brain felt lighter. I wasn’t panicking at every tiny thing. I was less foggy, less frantic. It’s hard to explain, like my internal chaos had taken the day off. Still a bit overwhelming emotionally though, because all of this is so new.

I realised I need help processing my grief, too. It’s something I’ve buried under the chaos, and now that the noise is quieting… it’s all floating up. But despite that, I felt grateful. Even excited about life. Weird, huh?

Day 3: Zombie Mode Activated

I got a whole four hours of broken sleep and still managed to stay awake all day without a nap. (Please clap.) Massive headache again (because of course), but my focus was chef’s kiss. I did a painting, tackled a paperwork doom pile, and ate actual food. Mood: brighter, despite the exhaustion. Small win.

Day 4: Can Someone Prescribe Sleep?

I’m seriously begging the universe for one good night’s sleep. Just one. Please.

Motivation was good though! I got stuff done, had a nap, ate properly, and felt a lot clearer in my head. The usual brain carnage was toned down, a quiet victory. But I desperately want to experience all this with a fully rested brain. It’s been years since I slept well. I miss her.

Day 5: The Grump Awakens

Still no sleep, running on fumes, and had yet another headache. My osteoarthritis flared up big time and my mood? Absolutely meh. Didn’t do much, didn’t feel like much. But I’m reminding myself not every day will feel like progress. Tomorrow is always a new shot at it.

Also, thinking I might need an afternoon top-up dose… because by 4pm I’m basically a zombie in leggings.

Day 6: Praise Be for the Nap

Still had a rubbish night’s sleep, BUT I came home from the school run and had a glorious, solid four-hour nap. Honestly, it was spiritual.

No headache today (hallelujah), mood was much better, and I even got hit with a wave of motivation… at 9pm. Of course. ADHD logic strikes again. Ate a proper dinner and, um… half a pack of biscuits. Look, we don’t judge.

Day 7: Meh x 3

Today? Meh. Mood: low. Energy: none. Focus: don’t even ask. It happens.

Dose goes up tomorrow for the final time, and I’m hoping that brings some more clarity and calm. For now, I’m resting, resetting, and reminding myself that every up has a down and vice versa.

Final Thoughts

Week 2 has been a mix of magic and migraines, breakthroughs and breakdowns. The sleep situation is still a disaster, and the headaches are not my fave, but the difference in my thinking, the clarity, the reduced overwhelm, the flickers of motivation are giving me real hope.

Thank you so much to everyone following my journey. Your encouragement means everything. Bring on Week 3. Let’s see what this next dose can do 💊💛

#adhdmeds #titrationjourney #adhdinadulthood #neurodivergentlife #adhdover40 #week2recap #sleepdeprivationnation #smallwinsbigfeels

01/07/2025

#QuietBrainClub, adhd, executive dysfunction, family, grief, late diagnosis, masking, medication, neurodivergent, RSD, titration
Dear Neurotypicals: This Is What You Don’t See

Hi. It’s me, Lucie, your neurodivergent friend, sibling, partner, person at the supermarket who looked like they were having a totally normal day… until they suddenly weren’t.

I want to talk to you about what you don’t see.

You see me smiling and making conversation, but you don’t see the script I rehearsed in my head for twenty minutes beforehand. You don’t see the mental flowchart I created on how to respond “correctly” to you, because every social interaction feels like decoding a language I don’t quite speak.

You see me on the school run, showing up (often late!) But you don’t see the absolute mental gymnastics it took to get there: the 42 alarms, the 5 “just five more minutes” snoozes, the pep talk in the mirror, the war I had with my clothes because everything felt “wrong” on my skin.

You see me smiling at the party, nodding along, laughing at the right times. You don’t see the internal meter ticking down—each second making the lights brighter, the music louder, the voices sharper, the fabric more scratchy. You don’t see me retreat to the bathroom just to breathe. You don’t see the sensory hangover the next day.

You think I’m overreacting when I cry in public, when I melt down “over nothing.” But it’s not nothing. It’s every tiny thing that built up and had no place to go. It’s the cup of overwhelm that got one last drop too many. It’s not weakness. It’s overflow.

You see what I show you.

What I think is acceptable.

What I’ve trained myself, sometimes painfully, to perform.

You don’t see the aftermath. The shutdowns. The three-day recovery. The self-doubt spiral. The silent scream when I realize I misunderstood something again.

You don’t see how hard I try.

And that’s not your fault. But now that you know, I hope you’ll understand why I cancel plans sometimes. Why I need things explained more than once. Why I go quiet. Why I isolate.

And I hope when you see someone else doing those things, you’ll give them grace too.

Because behind every “quirk” is a survival strategy.

Behind every “weird” behaviour is a brilliant mind trying to keep pace with a world not built for it.

So please… be kind. Be curious. Be patient.

You don’t need to get it to get me. You just need to care.

Sincerely,

Someone Doing Their Best (Even When It Doesn’t Look Like It)

17/05/2025

adhd, autism, executive dysfunction, family, late diagnosis, masking, neurodivergent, RSD
Grief with ADHD: Now Featuring Bonus Chaos

Grief is hard. Grief with ADHD? It’s like trying to cry and do your taxes while a raccoon throws your memories into a blender.

One minute you’re staring into space, the next you’re deep-cleaning the fridge because sadness showed up as “productive panic.” You forget important dates and then spiral about forgetting them. You cry because you remembered something sweet, then cry harder because you forgot what you were crying about.

Also: did you eat today? No? Same.

Neurodivergent grief isn’t tidy. It’s not linear. It’s a weird soup of feelings, executive dysfunction, and unexpected hyperfixations. But guess what? That doesn’t make it wrong. It just makes it yours.

So whether you’re disassociating in the cereal aisle or sobbing into a hoodie that still smells like them, you’re doing just fine.

Probably. (Let’s be honest, no one really knows what “fine” means anyway.)

12/05/2025

adhd, autism, executive dysfunction, family, grief, late diagnosis, loss of a parent, masking, neurodivergent, RSD
Dear Younger Me: You Weren’t Lazy, Rude, or Weird

If I could sit beside you on the edge of your bed after a long day of trying to be “normal,” or in the hallway after yet another moment where you felt like you messed up, I’d start with this:

You are not broken.

You’re not lazy, even if it takes everything in you to start things. You’re not rude, even if you interrupt or wander off mid-conversation. You’re not weird.. okay, maybe you are a little, but that weirdness is your magic!!

I know how confusing it is to watch other people do life with what looks like ease. How they get up, get dressed, remember everything, say the right things, and don’t seem to need a nap after a trip to the supermarket. It’s not because you’re failing. It’s because they’re not fighting their brain every step of the way… and you are. You always were. And still, you kept going.

You didn’t know the words: autism, ADHD, sensory overload, executive dysfunction. You just knew something about the way you processed the world didn’t match what was expected of you. It all seemed so easy for others! And when people don’t understand something, they label it. They called you difficult. Dramatic. Moody. Too much. Or worse…. lazy.

But now I know the truth. You were never lazy. You were navigating a world that wasn’t built for your brain, and you were doing it without a sat nav.

Here’s what I want you to know:

The things that made you feel like an outsider are the same things that make you deeply empathetic, wildly creative, and incredibly resilient. The way you felt everything so deeply? That becomes a strength. That feeling of not belonging? One day, you’ll find your people. And you’ll belong to yourself first.

You’ll stop trying so hard to be “normal,” because you’ll realise that your normal is valid. You’ll build a life that fits you, not the other way around.

And maybe most importantly, you’ll forgive yourself. For all the things you didn’t understand. For all the times you thought it was your fault. For every moment you tried to shrink yourself to make others comfortable.

You deserved kindness then. You deserve it now.

With love,

The Future You (who finally gets it)

04/05/2025

adhd, autism, executive dysfunction, family, late diagnosis, letter, masking, neurodivergent, RSD
Finding My Focus: The Start of My ADHD Medication Journey

In the next few weeks, I’m starting something I’ve been waiting a long time for: ADHD medication titration. And honestly? I’m so excited I can barely sit still (though that might be the usual ADHD).

For those unfamiliar with the term, titration is the process of finding the right type and dose of medication that works best for your brain. It’s not a one-and-done thing, it’s a slow and steady process of trying, adjusting, and checking in with your doctor to see how your body and brain respond.

Think of it like tuning a radio. You’re trying to find the clearest station! Your brain’s best “frequency” if you like, where things finally start to click.

Why This Matters So Much to Me

Living with ADHD, especially being diagnosed later in life, has been a whirlwind of “aha” moments and “oh wow, that explains a lot.” But even with all the self-awareness, strategies, and support, there are still days when I feel like I’m trying to juggle flaming swords while riding a unicycle. On a tightrope. In a windstorm. Literally!

I’m doing the work. I’m learning the tools. And now, I’m ready to add one more piece to the puzzle: medication.

This doesn’t mean I think meds are a magic fix. They’re not. But they really can help level the playing field, so I can use all the strategies I’ve worked so hard to build without constantly fighting against my own brain.

What I’m Hoping For

A little more calm in the chaos. A little more follow-through on the ideas I’m passionate about. A little more peace in the quiet moments And maybe, just maybe, the ability to finish a task without being lured away by 12 others.

I know the journey might not be smooth. There might be side effects, adjustments, frustration. But I’m going in with hope, curiosity, and the support of a doctor who understands and my little family!

Sharing This Because…

ADHD can be invisible. And so many of us walk around wondering why things feel harder than they should, until one day, the pieces start to fall into place. If you’re on this journey too, whether you’re considering meds, trying them, or even deciding against them…. I see you!

Every ADHD brain is different. Every path is valid. And every step toward understanding yourself better is worth celebrating.

So here’s to Day One of titration.

Here’s to science, support, and second chances.

And here’s to the possibility that things might get just a little easier.

02/05/2025

adhd, executive dysfunction, family, late diagnosis, masking, medication, neurodivergent, RSD, titration
Rejection Sensitive Dysphoria: The Drama Queen in My Head

You know that sudden, stomach-dropping dread when someone says, “Hey, can we talk?” and your brain immediately flashes to every mistake you’ve ever made from that awkward thing you said at a party in 2009 to not replying to a text within 3.7 minutes?

That, dear reader, might be Rejection Sensitive Dysphoria.

RSD, for those unfamiliar, is basically the emotional equivalent of living with your feelings wired directly into a high-sensitivity smoke detector. It’s not currently an official diagnosis, but if you’ve ever spiralled into self-loathing because someone might be mad at you (or worse, disappointed), then you know it’s as real as the anxious pit in your stomach.

And if you’re neurodivergent, especially if you have ADHD or autism, you might be more familiar with RSD than you’d like to admit.

What Is RSD? (Besides Annoying)

Rejection Sensitive Dysphoria is a fancy term for a very un-fancy experience: extreme emotional sensitivity to perceived or actual rejection, criticism, or failure. Emphasis on perceived. You don’t need to be actually rejected for the dysphoria part to kick in. All it takes is a raised eyebrow, a vaguely worded email, or someone taking a little too long to laugh at your joke.

For me, it feels like this:

Someone says, “Hmm, I’m not sure that’s the best idea,” and my brain translates it to, “You are a fundamentally flawed human being and everyone you’ve ever loved regrets knowing you.”

Helpful, right?

RSD tends to show up loud and uninvited in people with ADHD, and sometimes in autistic folks too. It’s not just sensitivity, it’s an overwhelming, sometimes physically painful reaction that can lead to shame, withdrawal, people-pleasing, or a well rehearsed internal monologue about how you’re probably the worst.

Real Life with RSD: A Theatrical Production

Let’s talk about how this plays out in real life. Say I text a friend and they don’t respond within a few hours. My rational brain knows they’re probably just busy. My RSD brain? It’s already planning the eulogy for our friendship.

Even tiny moments… tone of voice, lack of exclamation marks, or a short “k” in a message can feel like rejection. My brain fills in all the blanks with worst-case scenarios, because apparently, it moonlights as a dramatic novelist.

The Aftermath: Overthinking, Masking, and Avoidance

One of the worst parts of RSD is the way it sticks around. It’s not just the initial pang of hurt, it’s the hours (or days) of self-criticism, overanalyzing, and rewinding conversations like I’m watching my own personal horror movie on repeat.

Sometimes, to avoid the pain of potential rejection, I’ll pre-reject myself. “They probably don’t want to hang out.” “I shouldn’t apply for that job, they’ll just say no.” This lovely little habit is called self-sabotage, and wow, am I good at it.

Other times, I go full chameleon, people-pleasing, masking, over-apologizing. I try so hard to avoid rejection that I end up rejecting myself.

It’s exhausting.

Coping (Without Moving to the Wilderness)

Let’s get real: RSD isn’t something you just “get over.” But there are ways to cope that don’t involve faking your own disappearance.

Here are a few that have helped me:

Naming it. Just saying “Oh, hey, this is my RSD reacting” can slow down the spiral. It puts a little emotional distance between me and the drama in my head. Prepping myself for feedback. I remind myself that feedback is information, not a moral judgment. (I mean, I try. Sometimes I cry anyway.) Checking the facts. Did they actually say something hurtful? Talking to safe people. Sometimes, I just need to say, “Hey, I’m having a moment. Can you remind me I’m not a terrible person?” Humour. Honestly, laughing at how extra my inner drama queen can be has saved me more than once. If I’m going to spiral, I might as well make it a musical.

If You Feel This Too—You’re Not Alone

If any of this sounds painfully familiar, I want you to know: you’re not broken. You’re not “too sensitive.” You just have a nervous system that’s a bit… enthusiastic. And while it can be a real pain, it also means you probably feel love, creativity, and empathy just as intensely.

You’re not weak for being affected. You’re strong for showing up anyway.

And if someone ever tells you that you’re “overreacting,” just remember: they don’t know the epic inner monologue you’re working with.

30/04/2025

adhd, autism, late diagnosis, masking, neurodivergent, RSD